tag:blogger.com,1999:blog-431008621505335717.post3674620021102566645..comments2015-02-07T21:29:56.634-05:00Comments on Pieces Lived: Nowhere LandAnonymoushttp://www.blogger.com/profile/04174677494622531698noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-431008621505335717.post-78064328700083117762011-07-21T09:47:49.734-04:002011-07-21T09:47:49.734-04:00Dear Anonymous, I appreciate your opinion, however...Dear Anonymous, I appreciate your opinion, however I don't think you quite understand what you are talking about. You certainly don't know the context of the comments I referred to in this post. My family and friends are very important to me and very supportive.Anonymoushttps://www.blogger.com/profile/04174677494622531698noreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-7737500939010178392011-07-17T17:54:30.948-04:002011-07-17T17:54:30.948-04:00Oh Bethany you have a lot to deal with. Sometimes...Oh Bethany you have a lot to deal with. Sometimes when people say that Kemper is special they may be saying that with a mind in special education and special needs children. That is what he will need as he gets older and I am sure there was not any mean intention behind it. When someone says you would never know anything is wrong with him they mean he looks healthy and happy and they don't see any scars or effects of his condition. You can't take on the whole world and take offense to everything that people say to you. Especially your family and friends. They are your soft place to fall when you can't stand. If you make mountians out of everything then nothing in your life will be less than climbing!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-23661917907684089062011-06-16T00:25:01.277-04:002011-06-16T00:25:01.277-04:00Bethany, I love you this is an amazingly honest po...Bethany, I love you this is an amazingly honest post and if I have ever been one of the people to have said something hurtful, I apologize. I'm not a parent and I only know the things about SB I learned from you... I feel like a bad friend for not taking a more active part in your life with all that you are dealing with... Just know I'm here if you need me. I wish I was more tolerant and a better friend.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-68082480641614958102011-06-07T12:25:55.705-04:002011-06-07T12:25:55.705-04:00Thank you all for your encouraging words. It is t...Thank you all for your encouraging words. It is truly a pleasure getting to know other parents. I appreciate it.Anonymoushttps://www.blogger.com/profile/04174677494622531698noreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-90140161906424091852011-06-06T22:59:33.823-04:002011-06-06T22:59:33.823-04:00We also live smack in the middle of no-mans-land. ...We also live smack in the middle of no-mans-land. Many people we meet have no idea Davis has SB. But...we do! We don't fit in with the spina bifida community, but we don't fit in the non-spina bifida community either. Colleen is right! You're not alone!Vestihttps://www.blogger.com/profile/10944268776499414524noreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-35449143914860672992011-06-05T12:13:56.656-04:002011-06-05T12:13:56.656-04:00Hi Beth,
I'm so glad to see you back! Sometime...Hi Beth,<br />I'm so glad to see you back! Sometimes it's hard to find where you fit. There are a whole range of difficulties in our community. You'll find someone who clicks with you (in person or online).<br /><br />And that patience and strength? My Nick is 19 months and I've had new moms come to me, I have no idea where patience and strength come from - usually I'm winging it! Each surgery, each visit, each concern - they matter and they matter to you!<br />I think you have a great attitude!!Amanda_in78https://www.blogger.com/profile/05638290124749954482noreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-29595905361798730402011-06-03T23:08:47.412-04:002011-06-03T23:08:47.412-04:00I understand how you feel. Sometimes if your kid i...I understand how you feel. Sometimes if your kid is doing well, you feel like you're not allowed to complain or even ask questions because everyone else is dealing with something more major. But I think there are a lot of parents who feel they are in no-man's land, which means it's not really no-man's land at all. I think the majority of us parents feel like we lucked out with the SB stuff and with the kid we got. So don't ever feel ashamed or self-conscious about asking questions or venting or talking about it. The world needs to hear about the kids who have a lot of needs as well as the ones who don't have many needs. Can you remember when you were pregnant and looking for info and it seemed all you saw were worst case scenarios? Well, if you have a best case scenario, talk about it! That doesn't mean you are bragging or trying to make someone else feel bad. That is your reality. And I think it's the reality of a lot of people. You're not alone!<br />ColleenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-37005023078184070152011-06-03T18:01:15.103-04:002011-06-03T18:01:15.103-04:00I admire your outlook, Bethany. You're right. ...I admire your outlook, Bethany. You're right. There is absolutely nothing wrong with Kemper. He was fearfully and wonderfully made just the way God wanted him to be. I think we could all do ourselves well were we to look at the world through your newly opened eyes.Candyhttps://www.blogger.com/profile/17058024146203775218noreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-43542672455165147602011-06-03T17:00:16.735-04:002011-06-03T17:00:16.735-04:00I absolutely LOVE your honesty here! You will fin...I absolutely LOVE your honesty here! You will find your niche... and you will be a wonderful ambassador for the SB community! Your honest, raw, here it is mentality is exactly what it needs to be... people want to know the 'real' in your life! Not the sugar coated, it's all wonderful crap that is for television! Keep on, sista! You will do more good with your truth than you will with a facade. Love you!Anonymoushttps://www.blogger.com/profile/02060418220399806041noreply@blogger.comtag:blogger.com,1999:blog-431008621505335717.post-35744461667101030662011-06-03T13:12:51.403-04:002011-06-03T13:12:51.403-04:00I feel the same way about the "R-word" I...I feel the same way about the "R-word" I used it all the time, never caring who might be in earshot. Now, knowing how words can hurt-it changes you. <br />This is so beautiful, Beth. I enjoyed reading it. You sound exactly like me 2 years ago. <br /><br />Things will change, my friend.Erica Hoke (Potter) https://www.blogger.com/profile/02783770361359318976noreply@blogger.com